Feb. 6th, 2024

ADA rant

Feb. 6th, 2024 10:14 am
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I'm waiting for the gardeners to leave so that I can put the dogs out on the porch, thus minimizing the amount of poop needing to be picked up when we get home this evening.

I'll know more about Mom then.

ADA became law in 1990. It's not perfect. But the law itself, granting the right to accommodation for disability has been around for over 30 years at this point.

This house is a decade old. When Mom, Dad, and Sis arrived the front steps had no railings. With two people over 85, a sister who might visit on a cane, and Sis being over 50 putting up railings seemed the right way to go.

A gurney can, just about make it up those brick steps with the railings up, but the EMTs would not be in optimal positions. Still, the steps are narrow enough that I'm not certain it would have worked with the railings down.

A downside to open plan houses is that they have to have halls that are wide enough for a gurney or a wheelchair, but no one is required to measure the space around the kitchen island, for instance. So, Mom had to be rolled onto a sling, which would probably have been the first step anyway, but then carried by the EMTs and her daughters through the entire first floor, through the front door, and down the front steps to the waiting gurney.

How the builder got away with putting in a front door that couldn't accommodate a gurney, I don't know. I know that the contractor was building for his own use which may be a loophole in the law. All I know is that it added some precious time to getting her onto the gurney when time is the one thing no one has with a stroke.
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Sweet, the dancing demon, for all my Buffy peeps, died this weekend. He's the second DC to Broadway star to die recently (after China Rivera). I don't think I ever saw him live, though I may have when he was with Dance Theater of Harlem. I do know that out of the blue I really wanted to rewatch the dance scenes in Idlewild the other day which he choreographed.

Mom

Feb. 6th, 2024 12:32 pm
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This is going to be updated a few times today.

The palliative care specialist poked her head in and we had a brief conversation. It's the first time anyone's said no hope for recovery, but within that, there's still hope for some more time.

Quality of life is the big thing. With the help of Tricare for Life (essentially a Medicare supplement for military) we can do a great deal at home. No matter what, I'm going to be the primary carer: in all ways if she opts for home care, in more limited ways if she opts for a facility. I think home care is for the best, but Sis, based on our dinner conversation last night, is leaning the other way. Honestly, I think having the dogs around could be good for Mom.

UPDATE: Mom prefers to go home and it is the less expensive option.

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